The pantheon will be illuminated in blue and green to support the fight against the rare disease Neurofibromatosis
Wednesday, 15 May 2024
On May 17, nearly 500 iconic buildings around the world will be illuminated in support of a global initiative to combat the rare disease Neurofibromatosis. For the first time 4 Bulgarian cities are included, including Ruse. "Let's sanctify the NF" will also take place in Sofia, Veliko Tarnovo and Razgrad.
The event is dedicated to the fight against neurofibromatosis (NF), a genetic disorder that affects one in every 2,000 births, or over 4 million children worldwide. Although there are no official data for Bulgaria, according to the European Pediatric Tumor Foundation, nearly 3,500 are affected by the rare disease in Bulgaria.
The initiative is related to the illumination in blue and green - the official colors of the NF - of nearly 500 symbolic buildings, monuments and architectural landmarks in dozens of countries. Among them are popular locations such as Niagara Falls, the Royal National Theatre in London, Dublin Castle, the Sibeles Fountain in Madrid, the National Gallery of Singapore and many others.
In Ruse, after 21:00, the Pantheon of the National Revival Heroes will be consecrated, in Sofia - the National Palace of Culture, in Veliko Tarnovo - the Tsarevets fortress, and in Razgrad - the Clock Tower.
The aim of the campaign is to raise awareness and inform about the benefits of funding research in the field of neurofibromatosis and rare genetic diseases.
Neurofibromatosis refers to a group of genetic conditions that cause tumors to develop on nerves throughout the body that can cause blindness, deafness, bone abnormalities, disfigurement, learning difficulties, debilitating pain, and cancer. Currently, there is no cure for neurofibromatosis, but in recent years there has been serious progress in the fight against the disease and even the first registered drug that is available to patients.
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